Health Fairs, Various locationsEvery 4th Thursday of the Month Say It Loud! Hemoglobinopathies WebinarsFebruary 18th American Red Cross/107.5 WBLS Radio and Omega Psi Phi Fraternity, Sickle Cell Blood Drive, New Jersey City University
May 7, 8, New Jersey Governor’s Conference For Women, Atlantic City
June 9, Sickle Cellabration for World Sickle Cell Disease Day & Sickle Cell Blood Drive, Jersey Explorer Children’s Museum, East Orange, NJ
September 8th Tri State Sickle Cell Disease Collaborative
September 27-October 2, SCDAA National Convention Palm Beach Fl.
October TBA SCANJ 24 Seven Line Dance Marathon
November 18, Thanks For Giving Concert and Dr. Charles F. Whitten Award Program
December 8, Holiday Party, Van Vleck House, Montclair, NJ RSVP require
Say it Loud! Conversations on Sickle Cell Disease
Say It Loud! Conversations on Sickle Cell Disease began as a collaborative effort initiated by The Sickle Cell Association of New Jersey, Inc., The Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter, The Donna T. Darrien Memorial Foundation for Sickle Cell Disease and The Sickle Cell Disease Foundation of California. Our goal is to increase the volume and dialogue about sickle cell disease.
This year we are pleased to “Say It Loud! by inviting you to participate in the “Public Health Webinar Series on Hemoglobinopathies” Hosted by: The Division of Blood Disorders, Centers For Disease Controll (CDC). Please keep in mind that the schedule is subject to change.
The 4th Thursday of every month from 2:00PM – 3:00PM EST
The purpose of this webinar series is to offer a hemoglobinopathies
learning collaborative platform for providers, consumers, educators, and scientists.
Each month’s webinar will take place from 2:00pm – 3:00pm EST
Hemoglobinopathy Webinars are archived at http://scinfo.org
To Join The Webinar
Copy this address and paste it into your web browser: https://www.livemeeting.com/cc/cdc/join
Copy and paste the required meeting ID: 84QK2D and click “join”.
First Time Users: To save time before the meeting, check your system to make sure it is ready to use Microsoft Office Live Meeting.
To hear the presentation you must call in to the number below.
For Audio
Dial 1-877-953-6706 and enter participant code: 9706616
If you are unable to join us on the internet for viewing, you are welcome to call in for audio access only.
Participants outside the United States must be able to access 800 numbers to the US. Otherwise, please RSVP the location and number of participants for alternative international conference line access.
Hemoglobinopathies Webinar Schedule 2012
1/26: Transition of Care for Sickle Cell Disease – Pediatrics to Adult Care
Dr. Ify Osunkwo, Children’s Healthcare of Atlanta
2/23: Medical Home Model for Sickle Cell Disease
Dr. Michael DeBaun, Vanderbilt University
3/22: Strategies from the Field – Community Partnership and Health Education
CDC’s Division of Blood Disorders and RuSH Project States
4/26: Sickle Cell – Adult Providers Network
Dr. Kathryn Hassell, University of Colorado School of Medicine
5/24: Sickle Cell Disease and Emergency Department Use
Dr. Paula Tanabe, Duke University School of Nursing
6/28/2012: Sickle Cell Trait – What Every CBO Needs to Know
Dr. Lanetta Jordan, Memorial Regional Hospital
7/26: Improved Survival of Children and Adolescents with Sickle Cell Disease
Dr. Charles Quinn, Cincinnati Children’s Hospital Medical Center
8/23: Translating Research to Policy
Dr. Shawn Bediako, University of Maryland, Baltimore County
9/27: Improving Quality of Care for Sickle Cell Pediatrics in the Emergency Department
Dr. James Moses, Boston Medical Center
10/25: Strategies from the Field – Data Collection and Harmonization
CDC’s Division of Blood Disorders and RuSH Project States
November/December: — No Webinars—
If you have ideas on topics for future webinars, or have any questions or comments about this series please submit them to Shae Pope.
If you have ideas on how to put into action in New Jersey the information learned in the webinar please contact Mary at SCANJ admin@sicklecellnewjersey.org or call 973 482-9070.
Say It Loud! Conversations on Cell Disease” is open to all who are interested in spreading the word about Sickle Cell Disease. Your action item is to take what you learn and share the knowledge
